Category Archives: Uncategorized
Avon Walk San Francisco 2015
I signed up! Looks like I had better get this battered old body in shape if I am going to limp 39.3 miles in 2 days!
My daughter, Jennilee, will be walking with me along with three wonderful women that work at Team Ghilotti. It is going to be a blast.
We did a fundraising video..
If anyone would like to make a donation, here is a link to my Avon Walk page
Red is the new black?
Monday morning I noticed a red rash appeared on Muffy. Throughout the day it spread, along with it came fever & chills. By Tuesday it looked like a rash tube top that was so painful. By Tuesday evening, it was getting even more intense. Wednesday morning I called Mounds. I could tell he was impressed when I flashed him. He was also stumped. He asked if he could bring in a colleague to take a look. Sure, why not? Seems like every medical professional in Sonoma County has seen me topless sometime in the last two years. I would hate to leave one out. The colleague was equally as impressed by my red tube top (which was becoming a tank top). He wanted to do a punch biopsy.
The thought of a needle puncturing my new painful red tank top was not my idea of a good time. Mounds must have recognized the look of ‘oh, hell no!’ on my face. He suggested a different treatment first. I would have hugged him if it would not have hurt like nobodies business.
Mounds thought that maybe the procedure I had done last month might have been the source of the issue. During that procedure a large amount of special antibiotics were placed directly in to Muffy. That could have set up a perfect storm for my fungal friends to host a rager.
I was started on an oral anti-fungal and a topical ointment. Now I hope my fungus is not having any more fun.
I posted a photo of a small section of the rash. It looks worse on my chest, but let’s face it, does anyone outside of the medical community want to be subjected to that kind of visual trauma? I think not. You can thank me later.
Have a great day everyone. I will keep you updated.
Long time, no post.
As 2014 comes to a close, I am hopeful that the treatments and surgeries will be a thing of the past.
2014 brought 4 additional surgeries, a scare that the cancer spread to my bones, a few lumps that needed to be dealt with and a lingering infection that looks to follow me into 2015.
I am feeling strong, am forever grateful for my amazing family and friends.
2014 was a year full of blessings. My son, Tom, was married. His wife Carrie is now expecting my second grandchild. My daughter, Tina, became engaged and will be married in 2015. Jennilee has found the man of her dreams and I am hopeful that there might be another wedding to plan in 2015 or 2016. Kevin and Jennifer are both doing great and I could not be prouder. My husband, Glen has been my rock and my knight in shining armor.
Other than the constant threat of the cancer metastasizing, my future looks bright and I am eager to embrace whatever 2015 has in store.
Happy New Year!
The Making Strides Walk for Breast Cancer was wonderful. Team Learn to Like Pink was very well represented and stylishly dressed.
Thank you to all that made generous donations to the American Cancer Society.
I am so excited to be feeling well enough to participate in a short walk to fund raise for the American Cancer Society.
This is no Avon Walk, I am not ready for that marathon yet. This is just a pleasant little 3-5 mile walk that is right here in Petaluma. Our Team is looking great. My daughter in law, Carrie, designed t-shirts, I have cleaned out Amazon.com of anything pink (tutus, feather boas, socks, stickers, tattoos etc). We are going to be stylin!
I hope any local folks will sign up to walk with me. If anyone would like to make a small donation, it would be very much appreciated.
Graphic Photo Alert!
Pride is over rated. In fact it is one of the first things to go when diagnosed with breast cancer. Obviously it is not the first thing to go… the breasts are the first to go. Pride left shortly after.
Here is a lovely photo that was taken about 4 days post surgery. My poor belly was still pretty swollen, there are spiffy drain tubes poking out in several places. You also get to see a glimpse of Muffy in her penthouse. I have an adorable new belly button and below that an impressive line of sutures that goes from hip to hip.
I am healing well. A couple hiccups in the recovery, but other than that I am doing good. Still incredibly sore and have very little energy. The whole ‘no lifting more than 5 lb’ rule is just plain silly. Everything weighs more than 5 lbs!
All of the drains have been pulled, special tape added to my sutures for reinforcing.
There have been so many doctor appointments since the surgery. On one of my recent visits I was informed that I get to have a colonoscopy. Ick. Double ick. The idea of what happens during that procedure is creeping me out. They want to put that thing where? Shudder. Apparently the prep is suppose to be the worst part. Doubtful. The prep is done in my home in the privacy of my bathroom. The procedure is another story. Oh well, time to put on my big girl panties (oh wait, I think I have to take those off) and just have the darn thing done. I think I am only allowed clear fluids while prepping. Vodka is clear, right?
People are going to look at me and think my last name is Cullen. I have a very pasty complexion today. I wonder if I go out in the sunlight if I will sparkle like Edward. Hmmmm. Obviously I have been watching Twilight while on bed rest.
It has been a rough weekend. I knew all along the recovery for this surgery was not going to be rainbows and butterflies. I knew it was going to be difficult. I have to be honest, difficult hurts like heck.
After the surgery they installed a pain pump that kept my abdomen fairly numb. That pain pump ran dry last night. I had no idea what a good friend that little bugger was. That old saying ” you don’t miss it till it’s gone” comes to mind.
The Oxycodone has been a solid friend, but is the kind of wild friend that you can’t spend too much time with or someone will end up in cuffs. I think last night I might have double dosed, it is all a blur. I went on a crazy trip where my house was flooding, water pouring from the ceiling, I was running around like a mad woman screaming for help but I could no longer speak. Yep, I did all that without ever leaving my chair or waking up the dogs. Note to self…have Tina or Jennilee regulate the drugs.
Another issue has appeared. I have numbness in my right leg from the knee down. I can’t feel my foot. It is like the whole foot has been shot up with Novocaine. People that know me are probably shocked that I just used the ‘f’ word twice (I hate feet. Foot & feet are definitely 4 letter words). Poor Tina actually had to touch mine. I know she was nervous and wary when she started massaging my foot knowing full well that normally I would have launched her across the room for even coming near that appendage. The massage helped and feeling began to return. It remains at the ‘asleep’ stage now. I guess this is due to a pinched nerve or something and will resolve when I can eventually stand and sit up straight.. For now Mounds wants me walking stooped over like a little old lady.
Poor Tina had to do a bandage change today. Luckily for her she had Jennilee here to assist. Now my daughters got to meet Muffy up close and personal. My poor daughters will be scarred for life. I am lucky to have them.
Back to The Walking Dead marathon. I wonder what would happen is I double dosed and watched that. Probably best I don’t find out.
Home again, home again. Home is so much better than the hospital. The nurses were all so nice and I know they were just doing their job, but it sure is tough to get any sleep when you are being checked on all throughout the night.
I am tired, sore and cranky. The oxycodone will help with the pain, the dogs will help with the tired and cranky. I am pretty sure Mounds has a direct line to Lilly, my doxie x beagle. She planted her self on my lap the minute I sat down and will not budge. Good little bed rest buddy.
I have a lot of cool incisions and suture lines. The front part of my body looks a lot like a road map of Los Angeles. There are nifty ‘roads’ all over the place. It is so nice to look down and see good skin, not that burned radiated patch I used to have. Kind of weird knowing that used to be Muffy. Trust me, Muffy looks much better up top than she did as my muffin top. I wonder if under all of these bandages I have 6 pack abs? I should warn everyone now that if that is the case I will be walking around naked from now on! Heck yeah, 50 yrs old with upgraded boobs and a flat tummy. Sweet.
The Big Doozy
The big doozy.
Just going in for my hopefully last surgery for awhile. This is the one that includes a stay in what I am sure will be a luxury suite at Petaluma Valley Hospital.
For the first time since I got on this crazy cancer train I have some anxiety before surgery. I just keep thinking that my poor body has been through so much in the past 12 months. This will be my fifth major surgery in a year. Hoping that my creaky old body can handle this next one, the big doozy.
There is a huge reward for it if it decides to go along with the plan. Morphine. That is the gold medal at the end of this race.
My wonderful son Tommy is hanging out with me while we wait for them to wheel me back. He is resisting the urge to push buttons and turn dials on all the gadgets around here. Thanks Tom. Stay strong!
Alrighty, time to go to sleep. See you all later with my new improved boob and less ribs than I have now.